Update on Josh-"What's it like?"
One of the questions people have finally become more comfortable asking is, "What's it like?" The answer would be much more than we could share in a couple of paragraphs. It is a little easier to answer as a parent but I believe the only way to know what this has been like for Josh is to be Josh. I wrestle with this "Josh Question" everyday.
I've learned that the best I can do is sympathize but I will never be able to fully empathize. For to have empathy is to be able to identify with and understand another person's circumstance from their perspective. Josh is rare in that though he is completely cognitive, yet he is unable to engage with his surroundings the same way you and I do. He cannot care for himself in any way. He is entirely dependent on others for nutrition, for personal hygiene, for dressing, rolling over, room temperature, cough, scratching an itch. the list goes on. I have asked myself, "how would I handle this?' How would you handle this?
Yet in spite of everything, "every day in every way", Josh continues to get up and fight. And he does so without making excuses, without complaining, and without blaming anyone. At a time when I would be mailing out invitations to my pity party, Josh is remaining focused on getting stronger physically, mentally, and spiritually. He is teaching me a lot. I have shared this verse before but it bears repeating for Josh has been a living example of this for me:
Brethren, I do not regard myself as having laid hold of it yet; but one thing I do: forgetting what lies behind and reaching forward to what lies ahead, I press on toward the goal for the prize of the upward call of God in C